Sunday, August 24, 2014

Rewarding Myself!

This second treatment was pretty difficult so I told myself that I would get a little happy for making it through the week. Henderson has seen me eyeing some different Kendra Scott pieces so he suggested going to get some earrings. Saturday I was feeling a lot better, so after sleeping until 11, we headed to Dallas.  I got these earrings and Henderson insisted I get the necklace. :).  We then headed to Central Market where I got some amazing soup and made a list of all the things I want to eat when chemo is over. The second weekend is always really low-key but it was nice to get out of the house. We went to Sunday school and church this morning and it was great to see all of my sweet friends!  


Saturday, August 16, 2014

One-third of the way! (Treatment #2)

After yesterday, we are officially one-third of the way done with chemo!  Yesterday was my second treatment and I was even excited for it.  I'm just ready to get them all done with and now that I know what to expect, I'm excited to do each one!

I was feeling really great this week, just like normal pre-chemo days.  My hair started thinning and I have a small spot on the back of my head.  Right now I can move the part around and cover it up.  I'm hoping that it won't thin much more.  I know that the cold caps are working as most people lose most of their hair by day 21 and I'm the only person that can really tell my hair is thinning.

My office has instituted Pink Thursdays on the Thursdays before my chemo treatment.  Everyone in the office wore pink or a pink ribbon Thursday in honor of me.  Even the high-level execs who were at a leadership meeting sported the pink!  It blows my mind how supportive and loving they have all been, especially since I've been working there less than a year.  I am so very thankful for them!!




Mama got here about 7 Thursday night and we ate and all promptly went to sleep.  I was up at 4:30 and didn't go back to sleep.  Too many things to think about!!  We valeted (thanks, Colvins!  Everyone knows how much I hate to pay to valet!) and unpacked all of our bags and coolers.

Mama found these pink igloo coolers. They're so festive!! She stops in Shreveport and gets the dry ice on her way over. She's in charge of the caps and making sure I wear them and the frozen peas.  I don't know what I'd do without her!!!



Most people know about the cool caps but some people think that we have two igloo cubes full of food and drinks, ha!  Labs were at 8:20 with Dr. Blum's appointment at 8:45.  During her exam, both of us were having trouble finding my lump.  She was able to find it with me laying down but it was significantly smaller than it was on my first treatment day.  She was able to measure it and it was 1.5x1 cm!!  (At my biopsy it was 2.2x2 cm and my first treatment day it was 2.5x2 cm.)  It shrunk 1 cm in one treatment!!  And she couldn't feel the cancerous lymph node anymore!  Praise God!!  She said that since it was such a fast-growing tumor it reacts very well to the chemo.  She was also very impressed with my labs and kept saying how high my counts were.

When we got downstairs to get Mama and our coolers, Mrs. Cherie was there.  I love having extra visitors!  I asked for a private room in infusion and even though she couldn't give me one they did put us kind of off to the side.  So instead of asking for permission, I brought all three of them back with me.  (You're only allowed one visitor, two if you have the cool caps)

We got settled in and immediately had to do some photo opportunities and tweeting.  Mama even surprised us all with football tickets (two for me and HK for the Auburn game and two for Mrs. Cherie for Texas A&M).  We all wore pink ribbons that Sammons had gotten for us.



The prayer shawl is from FBC Eupora.  Love it!  The Dammit Doll - cancer edition is from my sweet friend Katie, and the cross is from Mrs. Cherie.  

The striped blanket was hand crocheted by my sweet friend Emily Young.  So thoughtful!

Henderson and I tried to get some retweets from Dan Mullen and Scott Stricklin and we succeeded!!





This treatment went by a lot faster.  The first one includes lots of nurse teaching and wait times to ensure there are no allergic reactions.  We put the caps on about noon.  The caps and the frozen peas I put on my fingers and toes (to prevent neuropathy and nail damage/loss) are sooo cold!!  They are almost unbearable.  Besides that it was a pretty uneventful day.  Even with the benadryl I was unable to sleep; I'm guessing the steroids have a hand in that.

For my first treatment, Henderson surprised me by hiring our cleaning lady back so that I came home to a super clean house.  Today, she came back and it was even free since she partners with a local non-profit to provide free home cleanings for cancer patients!  It's so nice to come home to a clean house!

Today I go back and get my nuelasta shot (to boost my counts) and on Friday I have my second Goserelin shot (it shuts down my ovaries to hopefully save them.  Even though we have the four embryos this is just another precaution).

Thanks for all of your prayers!  It is obvious after this treatment that they are working!  Please continue to pray for our families safe travels and that I would have the least amount of side effects.

Love,
Bailey & Henderson




Monday, August 11, 2014

The Diagnosis

I'm going to try to go back and document my feelings during the first two months of the diagnosis.

April 26
While Mimi was visiting, I found a lump on my left breast, almost under my arm.  I texted my mom who said even though she was diagnosed at 42, she was sure it was nothing.  Henderson and I were starting to try to have a baby so I actually thought it might have something to do with my hormones changing.  Additionally, a few of my friends have lumpier breasts that are caused by fatty tissue or cysts so I just assumed this was one of those.  I knew that I had an appointment in June with my GP so I just decided to wait until then to get it checked out.  We had weekend plans every weekend for the next six weeks and work was busy so I just put it off.  Thinking it was nothing.

June 2
My appointment with Dr. Islahi was over lunch.  I had called the week before to make sure she had enough time in my appointment to discuss the lump I had found.  At this point five people (Henderson, Mama, Daddy, and two friends) knew about this lump.  I remember getting on the examining table and saying, "I actually think this is nothing.  I can't believe I'm bringing this up, but with my family history I thought I should."  Dr. Islahi examined it and said that even though she believed it was probably a cyst, with my family history she wanted to order an ultrasound for the following day.  Because of my age, a mammogram doesn't show as much information as an ultrasound.  She said that if something was amiss, they would do a mammogram.  But she was sure it was nothing.  She reminded me she was going on a two week vacation the following day and that even if I didn't hear from her it didn't mean anything was wrong.  I had to tell my boss what was going on since in the accounting world, doctor's appointment means job interview.  :)

June 3
My ultrasound was first thing in the morning so I drove straight to Baylor Park Cities breast imaging.  I remember thinking how I brought the average age down by about 20 years as most women were there to get their annual mammograms.  The ultrasound tech was super sweet.  I actually teared up a little during the ultrasound thinking this is not what I should be doing on a Tuesday afternoon.  But I quickly wiped them away reminding myself that this was nothing.  She took A LOT of measurements and I was so bored.  So, I basically got her life story.  Then she went and got the radiologist.  Who's bedside manner could use some improving.  I remember her asking me to feel around and find the lump that I had found for her.  I quickly found it and she said, "So, it's not this one?" pointing me to another lump.  TWO.  I had two lumps?!  She said, "I want you to go over in the next room and get a mammogram done."  I not-so-gently reminded her that a mammogram was only if the ultrasound showed something suspicious.  Obviously, mine wouldn't have shown anything suspicious.  She prodded me over to the mammogram room.  The mammogram tech was so much fun!  I won't go into great detail but she really lightened the mood.  Afterwards, I went back in the ultrasound room where the doctor said that the mammogram didn't provide any information because of my dense breast tissue.  She then said, "I'm very concerned.  I think this is cancer.  You need to have a needle biopsy done on both masses."  I was laying on a table with my chest exposed, by myself, and she says that.  I just kept thinking she had to be wrong.  I then started asking all kinds of questions.  "With my age, surely I wouldn't need chemo."  "With the size of the mass, it would just be a lumpectomy, right?"  She proceeded to tell me that even though we were getting ahead of ourselves, I would probably need chemo if it was cancer.

I have to stop right here and say that I do think that she was just trying to be honest and not sugarcoat anything, but I feel that she could have done it a little differently.  This is not how you see it on tv surrounded by people you love and a doctor you know.  She put in an order for a needle biopsy for both masses and I scheduled it for Friday downtown.

My parents wanted to come so bad and be with me, but I just couldn't do it.  I wanted to be as normal as possible.  I was still holding out hope that this was pre-cancerous.  And I didn't want everyone worked up over nothing.  If my parents came to visit, especially together since they've been divorced for so long, it would mean something was wrong.  And absolutely nothing was wrong.

June 6
I had requested that everyone keep this information to themselves.  I may love Facebook and social media, but the last thing I needed was a bunch of cryptic unspoken prayer requests to get everyone on FB freaking out.  I hadn't even told my sister, but we did end up telling Henderson's brother and sister-in-law.  They had come in for the weekend to go with us to see George Strait and they wanted to see Henderson's clinic.  Since Henderson wasn't going to be there we had to tell them what was going on.  Henderson and I decided to treat this day like a fun day off.  After the biopsy we would meet Will and Brooke for lunch and enjoy the rest of the day.

The nurse that helped with the biopsy was about my age and super sweet.  She explained how everything would happen in great detail and answered all of my questions.  I had two doctors (one was a resident and one was a fellow) perform the biopsy.  It helped that they were both good-looking.  :)  After the biopsy was over, I asked what their professional opinion of the images was.  One of the doctors said that they knew it was not a cyst since they could tell that it was a mass and not water-filled.  He also said that benign masses have smooth edges and are one color; my masses were rough and had a different color in the center.  Even though he basically said that he believed I had cancer, he said it in such a nice way that he immediately put me at ease.  Henderson and I decided to put this at the back of our minds and enjoy George Strait's last ride!

Monday, June 9
My parents had come in the night before to be with us while we got the news.  One of the nurses that helped out with the biopsy, Karen, told me that she would call me Monday or Tuesday and let me know what the results were.  I went in to work and acted like it was a normal day, even worked out on my lunch break!  Around 2:30, I got a phone call from a Dallas number.  It was Karen.  I answered the phone and she said, "It is cancer."  She said that the second mass was a lymph node that the cancer had spread to.  I completely lost it.  Realizing that it was in a lymph node changed the whole ball game.  I had my office door shut while I talked on the phone and apparently my cries were very loud.  My boss was great, coming in to comfort me and telling me to head home and be with my family.  When I got to the car, I started making phone calls.  First to Henderson.  All I said was, "Can you go home?"  All I could think about was all of our dreams, the life we planned out, all of it just gone in one phone call.  I then called each of my parents and gave them the news and asked them to meet me at home.  I then called the two friends that I had told about the lump.  One had just gotten back from her honeymoon; I hated to spoil her week with the news but I knew if the roles were reversed I would want to know.

Walking in the door was so difficult.  Henderson was waiting on me outside so we were able to have a moment together before talking with my parents.  I just wanted to go to bed and cry and scream.  But I didn't want my parents to see me so upset.  They wanted to know what our next steps were but we had to wait on a few more results from the biopsy to move forward. Eventually I said, we can't just sit here all night staring off into space.  My dad headed back to Mississippi and my mom cooked dinner.  I don't know what it was but I do know I lost three pounds that week from my loss of appetite.  My sister and Aunt Janet told Mawmaw and my dad called Mimi.  Mimi and Daddy's brother and family were on vacation in Destin during all of this.  My mom kept saying, "so-and-so is praying for you."  Honestly, I was glad they were praying because I sure wasn't.  If I'm being really honest, I hadn't prayed about this at all.  Not even after the radiologist told me she was sure it was cancer. I was so angry.  Angry and mad and depressed that this was my life.  We had planned how we were going to tell our families we were pregnant.  So much for planning.  This is supposed to be the prime of my life.  I'm supposed to be working on my career, starting a family, traveling.  Not chemo.  I admit that two months later, I still can't believe this is happening.  Some days I feel that I haven't fully grasped it.  And I may not for a long while.

I feel like I should end this post with something happy.  But I can't.  The days I'm writing about were very, very dark for me.  I said things that I didn't mean, I had awful thoughts, and panic attacks were very common.  And even though I still cry every day, I'm realizing how blessed I am.  How thankful I am to be where I am, to have the family I do.  Life can change in an instant and that's why we must not take a single day for granted.

And I know it could be worse.  A lot worse.  I have access to amazing medical care.  I was able to pay my high deductible without thinking.  My office has been nothing short of amazing throughout this.  Life can change in an instant and that's why we must not take a single day for granted.